You may have seen my recent blog post regarding my decision on reversal surgery; and if so, you’ll know that the subject of IVF was approached.
I was in a weird place when I wrote that post, and I think it created some confusion as to what was actually said. There were a lot of people who commented telling me about their story, their miracles and how IVF is not always a last resort.
So, just to go into a little bit of detail now that I’m coming to terms with things and feel a little stronger about what’s going to happen…
Basically, there’s a lot of theory as to what could potentially happen after my surgery. I am going to be having a straight rejoin, as they managed to leave the whole of my rectum when I had surgery for an ileostomy. So what they will do, is reconnect my small bowel to my rectum. I will be able to go to the toilet “normally” again and they said the chances are I will only go around 2-3 times a day, as opposed to the 7-8 times I empty my bag. That was fab news, as I had assumed it would be a similar situation, just without a stoma.
What I had also been told is that there is no cure for colitis. Again, I assumed that having my colon out meant the colitis had cleared. But I will always be prone to the symptoms, and there is a chance it could become active in my rectum again. I will still have symptoms such as fatigue and achey joints also, but there will not be a need for any emergency surgery. It won’t get to the point where I’m fighting for my life again.
There is a 70% chance that the colitis will flare badly again and I will become ill, and if this does happen, I will be moved in for J-Pouch surgery. This is where they take out your rectum, and create a pouch out of the end of your small intestine, which is pretty much a replacement rectum. You can then continue to go to the toilet normally.
Of course there is many risks in the surgery, and I could eventually end up with another stoma. But I am prepared for that, of course.
In regards to IVF, I have been told there is adhesion on my bowel. This lessens the chances of getting pregnant, as it makes it more difficult to conceive naturally. I can however carry a baby and give birth. Of course, they give you the worst case scenario and by law need to inform you of all potential risks.
By having the next surgery, I will be increasing the amount of adhesion on my bowel, and there for the chances of conceiving naturally lessen again. If I do become ill again, and therefore need a J-Pouch, I’ve been told the chances are I will have trouble conceiving naturally and will definitely need IVF.
Of course, I completely appreciate that lots of people have conceived naturally, and in no way am I saying it was impossible. At first, I was scared it would be impossible for me, but after hearing all your wonderful stories, many of you have really given me the hope and support I needed. So I just want to thank you for everyone who has taken the time to send me over their stories, and any other positive information that has been sent my way.
Right now I think I’ve just got to focus on what’s right for me. I fear I’m really going to miss having a stoma, but there’s no way I can go through life thinking “what if”. For me, I’m just really excited to not have to deal with my burnt and sore skin! I’m extremely grateful though that my skin problems are the only problems I have had with my stoma, as it will leave me going into my reversal with nothing but appreciation for the life it has given me. And if I need one again, then this time round, I will be more than ready for it!
On another note, I am currently looking for contributors for the blog, this time those who have had or are facing stoma surgery, or reversal surgery. I’d love to read and post your stories for others to see. So if you have got any stories you’d like shared, please email me at firstname.lastname@example.org.