The Ins & Outs Of My Ileostomy Reversal & Setting A Date For The Surgery

Tomorrow i’m meeting with my surgeon to hopefully set a date for my reversal surgery. I’m not exactly sure how soon they’re looking at doing it, or when I feel is going to be a good time to do so either, so I’m hoping they can be quite flexible, so that I don’t have to rush into doing anything. There’s a lot of things that need to be talked through (which I will write about either tomorrow or Saturday) and a lot of things I need to decide on.

As I don’t think I’ve properly written about it before, I thought I’d just tell you a little bit about what the reversal surgery entails. Apparently it is a much more minor operation as opposed to ileostomy surgery, but still entails a hospital stay of up to 10 days. I’m having a straight forward rejoin. What this means, is they will take the end of my intestine, (my stoma) and place it back into my body. They managed to keep the whole of my rectum – a lot of the time rectums can also be diseased and inflamed and have to be removed with UC – and so they are literally going to reconnect me, small intestine to rectum. Of course my digestive system will still be different to a “normal” functioning system, as I have no large intestine. The large intestine is what solidifys your stool. I will probably use the bathroom more often than others, they mentioned 2-3 times a day. Which to be honest I don’t actually think is that bad – my boyfriend goes more than that!!! (Sorry Angelo)

They’ll wait to check my digestive system is fully functioning again before releasing me, and hopefully that will be the end of my illness… Although, there is a 70% chance of me getting ill again. What I didn’t know, and I feel a bit silly for not knowing, is that UC isn’t cured by ileostomy surgery. You still get all the symptoms such as fatigue, achey joints, sore skin, irritated eyes etc, as well as my rectum becoming diseased. Should my rectum become diseased, I will be back to the hospital for a more major J Pouch surgery. What they do in this case is remove the rectum, and form a pouch out of the end of your small intestine in the shape of a ‘J’. This then works as a rectum. If some of you are unsure of what your rectum does, it is what gives you control over your stool. It stores your stool and helps you keep it in when you feel like you need to do. So yeah, it’s pretty vital that you have one if you want to use the toilet like everyone else.

Anyway, I hope this explains a little if you were unsure as to what to make of my previous blog posts. I’m sure lots of you know already, anyway.

I’ll let you know how I get on tomorrow, anyhow!

One thought on “The Ins & Outs Of My Ileostomy Reversal & Setting A Date For The Surgery

  1. Leighann says:

    I just wanted to let you know I enjoy reading your journey. It has helped and answered do many things for me. I had to get an emergency ileostomy last summer on July 18. Only remember because of date on my papers. I went into hospital in June for a Neuro crisis with my Lupus. I was paralyzed in my legs amount other things. They did ten days of plasamphersis to reverse damsge. 12 days later I was to start chemo that might for lupus and go to rehab. That night all hell broke lose. All I know is I had internal bleeding and I went septic. My husband said all my brothers had to fly in because I was told my outcome is not good. Six surgeries in less then 2 months. I somehow beat the odds. I had so many infections and they had to keep opening me up due to bleeding and the one surgery was for my bowel. I lost blood flow to part of small bowel. By Nov I got to come home but had to learn how to do everything all over again. I spent 2 months in a skilled living facility and my wound had to heal open with shockvac. It took me a long time to look at that wound and accept this bag. I am told it can be reversed but I’m still not healed enough yet. Plus I’m scared to go under the knife again. I wish you the best with your surgery. Again thanks for all your info.


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