Finally, what you’ve all been waiting for – Hattie’s first update since her reversal surgery!
I’d first just like to say a huge thank you to everyone who supported me during the time I spent with an ostomy. It was both a huge learning curve and an inspiring time for me. I found so many great people through a variety of IBD groups who inspired me to keep going, and who also made coming to terms with my ostomy easier.
As you’ll all know, on the 20th of October of last year, I underwent reversal surgery.
Because I’d had my large bowel removed but obtained my rectum, I had a straight re-join reversal, in which my small bowel was connected to my rectum.
I was told the operation and recovery would be easy – but boy were they wrong. It was a truly gruelling process. The 3 days I was supposed to be in hospital turned to 11, and I was unable to eat or keep any form of liquid down for 9 of those days, meaning I lost an entire stone during that week.
The way I felt was horrendous. I had no self control. No control of my bowels nor my stomach. I was in a lot of pain and I felt sick the entire time. I worried I’d made the wrong decision.
But, each time I looked down at my stomach, I cried…with happiness. Not necessarily because I no longer had an ostomy bag – but because my new stitches were a reminder of how far I’d come. I felt a little sad, that my journey had come to an end. I’d spent so long writing about life with an ostomy that I worried about what I’d do next.
Fast forward 6 months, and here I am. Sat at my laptop, with a healed stomach, drinking a glass of cider. I only note what I’m drinking, because it’s something that I wouldn’t have been able to drink before. Since my reversal, I have been able to eat and drink what I want with no issues.
Sure, it was hard at first. I was using the bathroom 6-8 times a day and for a couple of months I feel I regretted the surgery, because I had to take a few months out of my new job as I was constantly suffering with cramps, and I couldn’t rely on my stomach to behave. I was also really, really sore going to the toilet. But hey, who wouldn’t be after not going for 9 months?! I personally am really pleased with my reversal.
I think the key is to wait it out. Don’t get upset. Things take time. In the space of 6 months, I’ve gone from using the toilet 6-8 times a day to 3. The only thing I rely on is Imodium.
If you’re opting for a reversal, don’t be too hard on yourself. Give yourself time to heal. Allow yourself that time to come to terms with things and understand that things don’t get better overnight.
There are definitely parts I do miss about having a stoma bag – not being on the toilet for 20 minutes at a time is one of them. And I don’t think I’d be upset should I ever need one again. But having the reversal, for me, has helped me gain some control back over my body. And I’m glad to update you all that I now couldn’t be happier.