Stoma surgery? IBD? Low Self Esteem? You’re not alone.

Hi! My names Hattie Gladwell and this blog represents my life with a stoma, and how I learned to live with an Ileostomy Bag. I underwent Ileostomy Surgery following a diagnosis of Ulcerative Colitis in February 2015, and since have spent my time helping myself and hopefully others regain confidence after Ostomy Surgery, whilst writing for SecuriCare Medical.

I have always felt that confidence is a great thing to have; and I understand that a stoma bag can be hard to deal with. I’m still dealing with it, but my aim is to gain my confidence back whilst doing so!

Here I will be posting my experiences and anything I can to help raise awareness for diseases like Ulcerative Colitis. Feel free to submit your own thoughts, stories and photos!

Here’s my story…

On Monday 26th January, when I was 19 years old, I was admitted to hospital with suspected appendicitis. My appendix was taken out in an emergency operation the following day, but it turned out my appendix wasn’t the problem. I had been gravely ill the previous week and this operation had not solved anything, it had merely given me more pain. With severe abdominal cramps and diarrhea still, I was given two colonoscopy’s. The doctors were unable to get into my colon because of the amount of waste sitting in there. They left me for 5 more days on high pain killers, I was pretty out of it on morphine most of the time but it did not stop the screams of pain and constant rushes to the toilet. It turns out the registrar had misplaced some information from my examinations and not informed the doctor of the seriousness of my case, as once aware, the doctor warned my parents of another operation, judging on how I was coping the next day.

Saturday came and nothing had changed except the extortionate amount they had upped my pain relief. I remember my mum telling them “you wouldn’t keep an animal like this, you’d put it down!”. My best friend was visiting as well as my parents when something didn’t feel right. Something alarmed me and I felt a burst in my stomach. “Did you hear that? Something popped! Did you hear? Mum! Something popped inside me! Help!”. My mum screamed for a doctor but the nurse just wanted to up my pain relief again. My mum wasn’t having any of it! “You get me a doctor NOW or I get one myself”. My friend ran out to the front desk for a doctor, and then called my boyfriend.

All I remember from that moment on is a rush of people. A blur. A doctor shoving a piece of paper in my face for me to sign for an operation and my mum squeezing my hand. I didn’t understand what was going on and I was terrified. My boyfriend came and held my other hand, and all I could see in his eyes was fear. My mum explained to me that I was going to be going into theater. Confused, I cried in fear. It was at that point that I was told if I did not have this operation, I would die. It was then I saw the tears in my boyfriends eyes. The heartbreak. And it’s funny, because at that point, I stopped thinking about myself. The only thing I focused on was making sure I told everyone I loved them. Everybody in that room with me needed to know I loved them.The last thing I’m aware of is waking up in pain. Absolute agony. I couldn’t breathe, I couldn’t move, nothing. I felt like a robot. I felt like the life had been sucked out of me. My mum tells me I cried out “Help… Me… Mum” all night long. I don’t know.

The few days were silence. I didn’t want to talk to anyone about what had happened. I didn’t want to know. I just wanted to forget. Then the nurse came round to check on me. A different nurse. And that’s when I had to look. I peered down at my stomach in fear, and saw my worst nightmare. An ileostomy bag, followed by a large scar down my stomach. I pulled my head up as quickly as I could and sobbed, and sobbed.. and sobbed. I couldn’t deal with it. I felt disgusting. I didn’t understand. Why me?

For those of you that don’t know what an ileostomy bag is.. it’s a bag for your stool. During my surgery, I had had my colon (large intestine/large bowel) removed from my body. I had been diagnosed with ulcerative colitis. It had gotten so bad that if they had left it a little longer, it probably would’ve ruptured.. and I wouldn’t be here. I am now left with just my smaller bowel, which is sewn through to the outside of my stomach, the end is called a stoma. As you can imagine, it broke my heart. It scared me. It made me feel abnormal. I can no longer go to the toilet like a normal person, I can’t eat like a normal person, what’s my boyfriend going to think of me? How will I ever look at my body with confidence again?

Over a week since the operation, they’ve finally let me out and I am starting my two month recovery period. I’m in a lot of pain and I still cannot bring myself to look at the stoma beneath the bag. The disease has caused me to lose over a stone in weight and I am struggling to put it back on as I no longer have a proper digestive system I’ve moved back home and my mum is currently my carer. She’s helping me come to terms with it all. I’ve joined some websites to talk to others in the same situation and I’m going to deal with it, I have to. I have to be grateful, this saved my life. I need to be strong and help myself. This is not going to change me. This is not going to defeat me, and hopefully, I will be able to look at myself and feel happiness again. I’ll be able to appreciate myself as much as I should’ve beforehand. I’ll be me.

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172 thoughts on “Stoma surgery? IBD? Low Self Esteem? You’re not alone.

  1. James says:

    Hey hattie just want to say you have an amazing figure still you really do keep strong and your blog website and video blog are sooo good really proud of what your doin your an inspiration to a lot of people out there .

    Liked by 2 people

  2. Abbigail says:

    I’ve followed you on multiple social media sites for years now, and I would just like to say damn you are going through so much. You’re two years older than me and way ahead in experience by far. You’re such a strong person, and I admire you so much. I know it doesn’t mean much coming from me, a 17 year old girl in the U.S., but you’re beautiful, and I’m so proud of you for not giving up on yourself. You’ve got this! x

    Like

  3. Becky says:

    Hi hattie, reading your story brought a tear to my eye, your so strong with coping with all of this, really cant imagine what your going through. Wish you all the best with your recovery x x x

    Like

  4. Linda says:

    It upsets me when I hear story’s of people so young going through this I have had my iliostomy for 22 yrs and suffered for 10yrs previously before. I was prescribed high doses of prednisolone to control it and this has now resulted with osteoarthritis, once I had my stoma my life changed completely I have never let it stop me doing anything and have never covered up the fact I have a stoma (poppy) it is called, but I did for years think I was the only one with one it is good people are open about things like this wish I had more support back then good luck on your journey xx

    Like

  5. Steven Hill says:

    April of last year I had a sever pain in my left side. I went to doctors and they could not find anything wrong The pain got so bad that I went to the emergency room and had to have an emergency operation. My colon became tangled up and part of it died. The doctor took a quarter of my colon out and I have a colostomy. I found out that Heather Orouck from poltergist and Maurice Gibbs from the BEE GEES had the same thing but they died from it. I have much graditude that I am sitting here to talk about it. If I could help another colostomy patient learn to live with a colostomy I would be grateful. I ve been a surviver for a year and I am always learning to live with my colostomy.

    Like

  6. nicoledcn says:

    I really love your blog, I think it’s great that you’re talking about such important and thought provoking topics, and raising awareness about something people may not have thought about before x

    Like

      • silvia says:

        Hola yo también he llevado 9 meses una ilostomia y una colostomia por culpa de una ineligencia médica después de despertar del coma cuando el medico vino a decirme lo k había pasado y a explicarme lo k tenia k yevar no me lo podía creer keria morirme no entendía como y va hacer de vientre por hay bueno mi historia es muy larga solo kiero decirte k te entiendo muy muy bien por k yo he pasado por eso y kiero k sepas k tienes todo mi apollo para lo k necesites

        Like

  7. Zoe says:

    Hi. As a new healthcare assistant myself I had never seen a stoma bag. I’d heard of them but is never seen one. I know I don’t have one but I found my patients felt it was a little less awful when I asked questions about it or got them to tell me how to change it. It makes them feel in control and a lot of people take comfort in talking to someone who is outside of your family and friendship group. Really admire your courage and they make you unique. Your still alive with just a little added extra 🙂 xxx

    Like

  8. Elaine Scammell says:

    Hattie, You are an amazing woman! well done for becoming strong and learning to live with your bag, I am sure that it is an ongoing journey for you, but I for one know that you are strong enough. Much love x x Leaf

    Like

  9. karin says:

    Hi Hattie you don’t know me but I’m an old school friend of your mum’s and knew your grandparents. Just read what’s happened to you and wanted to say well done.youre a brave brave girl.you have the strength of character quite clearly to get through this and you will go on to help others I can tell.As a nurse and I am too aware of the challenges you will face -but I admire your spirit and determination.lots of love and good wishes to you xxx

    Like

  10. kelly says:

    Im so sorry for what u have been through … u r a beautiful brave inspiring young woman xx i hope u have a speedy recovery and i wish u all the love and luck in the world xx 💖💖💖💖 well done and keep up the writing … u will be helping urself and so many others in ur situation to deal with something so scary and personal xx keep up the great work xx

    Like

  11. wenwoo74 says:

    I thank you Hattie for sharing your story, I have an 15yr old Ileostomy bag due to Crohn’s Disease.
    I am 40, I am a mother, a partner, a carer and a waitress, my youngest daughter is turning 17 soon.
    A lot of younger Ostomates are trying to bring more attention to IBD’s as well as Ostomy’s, which I think is fantastic the more the WORLD knows about the trials and tribulations of IBD’s and Ostomates the better off it will be more people will get help sooner, more research, better meds and then hopefully CURES!!…….

    Thanks Again Hattie 🙂 xx

    Like

  12. amy says:

    You are amazing an brave an a role model. Iv got 2 stomas. For over 25+yrs. An its people like you that make me proud. Like i say iv had mine for over 25yes. If you feel u need someone to talk to yourself. Feel free to get in touch. Much love xx

    Like

  13. Mark says:

    Hi Hattie, just thought that you might like to hear from a partner of girl with a stoma bag. She is now 35 and we met 4 years ago when she was suffering with the usual symptoms. One of her main problems at the time was a restriction in her colon which caused much pain. I remember very well hearing her struggling with it at night and never quite knowing when she would need the toilet. This I found so tough as I could not help her. In October 2012 they had to operate to remove the restriction and whilst her bag was temporary, infections caused a lot of additional scarring. Then two years later, she became very poorly again. Within 4 days of going to hospital for investigations, she was being operated on to remove her colon. When she returned home, I remember her saying that she needed me to give her the blood thinning injections. The needle went into her leg, I pressed the syringe and nearly passed out! This was the ONLY bit I struggled with. To me she is exactly the same beautiful girl that I met at the start, minus most of the physical pain. Showering and looking at the stoma was hard, but we worked through it together. We called the bag Zoomer after my daughters toy dog which I think helps as opposed to calling it a bag. It still makes us all smile. And in the second operation they removed all of the original scaring which she hated so much.We went away to the Caribbean this year and whilst she naturally worried, she wore carefully chosen swimming costumes and no one knew. She truly looked stunning. There will be tough times for all stoma bag wearers, this I accept. But I nearly lost the person that I love so I am grateful to Zoomer for keeping her with me. It is just a different part of an amazing person, it has taken away most of her pain which is great and we are looking forward to spending the rest of her lives together. So always look for the positives, continue to talk about your concerns to those who love you and you will do great

    Like

  14. stephen Stock says:

    Hi MORETHANYOURBAG
    Having just had my Ileostomy on the 13th of feb 2015, i cam sympathize with you. i don’t think that any prior research or knowledge can prepare you for the stoma it is so alien to what is normal, but one adapts and so will you. take care, you sound as if you have plenty of support.
    Fellow Bag wearer.
    Stephen

    Like

  15. Stuart kenny says:

    Hiya. In my case I don’t have family to talk to about this as they prefer to brush it under the carpet. I get more sense and help out of talking to and reading about others in the same boat. I started off with an ilieostomy due to colon cancer which was to be reversed after 12mnths, but unfortunately it was made to small and leaked everything bar the garden shed back into my body causing acute scepticeamia. Man I hope no one on here gets that. Next to chemo that’s the worst thing I’ve ever been through. Now after 4yrs, 16ops and uncountable hospital bed baths Ive got apermanent colostomy. I’m glad I had the ilieostomy first though because unlike most others i didn’t have to go through the learning process. We need places like these because there’s no better way of learning than off someone further down the line. Keep up the good work!!

    Like

  16. Sydney Robinson says:

    Havent stopped reading your blogs since you posted them on Facebook about your Stoma. Im so sorry to hear that this has happened to you at such a young age.. but by what you have written you are a very strong, independent women, think positive about it all.
    You have done yourself and everyone around you so proud by what you have achieved so far! Dont listen to anyone other than yourself either, cause your opinion is the only one that matters.
    Stay strong! You have overcome the worse, look towards the brught future!
    Sydney x

    Like

  17. niphies says:

    Hey! I’ve recently been diagnosed with ulcerative colitis after experience constant pain, bleeding and diarrhoea over the course of three months. It’s caused me to be anaemic, and they don’t yet know if my flare ups are severe enough for me to have to go to surgery. I stumbled upon your blog by accident – a week before my official diagnosis – and you’ve really helped me come to terms with having this illness, so thanks!

    Wishing you all the best,
    Nicole.

    Like

  18. Sheila Stean says:

    Hi Hattie, so pleased that your life has got back to normal! you are brave and beautiful and strong and now healthy as your disease is now gone.My son had emergency surgery like you as his bowel perforated due to severe UC and has a stoma. It’s strange what you said about saying I love you because that’s what he said to us as they wheeled him along to theatre. Now after a year he is normal weight and plays sport of all sorts but is not brave enough to swim yet, so good for you! He has started on the journey to reversal of the operation, have you considered this? Best of luck.
    SJS

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  19. James C says:

    Hi Hattie,

    Congratulations on the Blog, i myself suffered from UC back in late 2001 – Feb 2002 and had to have emergency surgery following 3 weeks of being in Hospital being gravely ill. I then had a pouch created in 2003 and had a reversal in the same year. That was back when i was 19 (the same as as yourself) and i’m 32 this year. You’re very brave for posting such candid shots of yourself with your Bag, i’m sure i couldn’t have done this back when i had mine, so well done! The unsung hero’s throughout the ordeal i felt were my Stoma Nurses who both were absolutely brilliant (Maria & Julie) and helped me through the first few months of adjustment. I hope this Blog creates more awareness about the Disease and hopefully one day the Doctors and Scientists will find out why this debilitating Illness is caused.

    from James

    Like

  20. Shelley Lewis says:

    What an amazingly insightful and courageous young lady you are! At such a young age to be struggling with the changes having an illeostomy can bring is hard enough but to have the strength to share such a personal journey is remarkable. I have UC and am hoping to avoid surgery, currently on immunosuppressant therapy but taking time to settle, your blog was refreshing to read and so very honest! Keep doing what you’re doing, ups and down days are all part of the journey and the only way is up. Thankyou for sharing your experiences, it’s a privilege to read. Xxxx

    Like

  21. frankdodge99 says:

    Hiya, I just wanna to tell you that you are really brave and very encouraging person which is the great thing about you. This is good thing to me to hear because I have one of my friend has the exactly same condition. He had this condition when he was just only nine years old and after the operation, he was terrified to show people including his friend about the problem he got. So it took serval years to let his parent encourage my friend to show what he really has to us. He done it when he’s just 11. So I was quite amazed how brave you are. So I just wanna to tell you……… Stay strong and ur not the only one who has it.
    Thanks frank

    Like

  22. Liz Saunders says:

    Hi,

    I am a psychotherapist and work with young people with emotional problems. I think you are a true inspiration and an excellent role model to have managed this problem so marvellously at a time in your life when physical appearance seems so important . Good luck for the future.

    Like

  23. Glen says:

    Hi Hattie – good for you!! I had UC at 25 and my ileostomy at 27 – I am now 52 and haven’t been ill since in any way so count my blessings all the time.. It could have been so much worse and it is so good to look positively at the long future you will have in front of you. Keep up the great work. Regards, Glenys

    Like

  24. Rachel says:

    Wow…..What an inspiration……I am a mum of a 3 year old who has an ileostomy for life due to an intestinal failure……As a mum I constantly worry about how life would be, for my 3 year old son would be……..Stories like yours fill me up with hope……Keep it up. XXX

    Like

  25. Laura says:

    Hi Hattie,
    First of all a massive thank you for bringing this topic to the forefront! It is a horrible condition which my mum has has for almost 30 years (you would never know to look at her), she is amazing and truly an inspiration. I now am too going through tests to establish why I am in constant pain when eating. I recently had an endoscopy which came back normal. Then had a colonoscopy which the dr had to stop as I was in excruiating pain. I am now waiting for a CT scan but being in pain all the time is scary. X

    Like

  26. Izzy says:

    Wow, really amazing and inspiring attitude, you’re a true role model. I’ve read your whole blog, I knew nothing about the condition before and feel my ignorance is now lifted. Keep doing what you’re doing 🙂 x

    Like

  27. Anna Bull says:

    Hi Hattie
    You are an inspiration to all UC sufferers, myself included. Having been diagnosed 8 years ago I have always feared what may come in the future. It’s good to know that there are brave women like you who are willing to share their journey in the hope that it may support others.
    Thankyou,
    Anna x

    Like

  28. Legendary Clint says:

    I had an emergency operation after my ulcerative colitis went toxic megacolon in 1997, but I was left with 20cm of my lower colon opened up as a mucus fistula, and my small intestine as an ileostomy. Unfortunately after 8 weeks of numerous stoma complications, MRSA (yep, been around for years) and eventually sepsis, my surgeon stitched both ends together as there were no options left. Somehow I survived, and I was discharged after 5 months with chronic colitis and a scar that that looks like the Grand Canyon. After a few years, and many arguments with so called specialists, I was introduced to Mesalamine (2400mg a day) and it changed my life. I put on 5 stone and got my life back.

    For the life of me I cannot understand why they removed everything. My surgeon said I had total colitis, and that was extremely rare, but they still kept the tail pipe just in case. I am posting because your case history makes me furious. I have been to the Royal Free Hospital in London and they told me that my treatment is now standard. Get in touch with NACC for more information and support.

    Like

  29. Anita says:

    Hi Hattie. I’m a lot older than you, but was diagnosed with UC when I was 28 and then spent 10 years suffering; not just me, but my family too. Like you, I became seriously ill and was admitted to hospital for surgery and came away with my own stoma and ileostomy. In December this year it will be 10 years since my surgery and 10 years of my life back. I would not change a thing! The stigma of having a ‘bag’ makes it so difficult for us ostomists at times, so your blog and the subsequent media coverage can only be a good thing. I am now at university studying for my nursing degree and am hoping to help others in our situation when I qualify. You are not only gorgeous, but brave too. Sending you all the best for your bright and beautiful (and healthy!) future xx

    Like

  30. Fortnightly Recipe says:

    What an inspirational blog, it’s brilliant how well you are able to write about such personal experiences and in such a relatable way. I imagine reading something like this is absolutely invaluable to people having to adjust to such conditions and all the potential difficult decisions that come with it. I look forward to learning more!

    Like

  31. Ryan Farrell says:

    The fact that you are where you are now is really inspiring, and if I had read your stuff when I first had my stoma when I was 19 in 2011, I probably wouldn’t have spent months alone in my room, sick at the sight of myself. My Crohn’s Disease led to a hospital visit and the same “pop” as you described, but my stoma was temporary, because after the damaged bit of large bowel was removed, the rest was relatively fine. I was told it could be between six months and five years before the reversal, so pretty much became a recluse for the first year, and never really got back to normal. I had my ileostomy reversed after three and a half years this December just gone, and it was a pretty good feeling, although not as momentous as I expected. You seem to have adapted really well after such a short amount of time, and it almost makes me feel a bit childish in comparison! But I suppose everyone’s reaction is different, and I’ve met some people with ileostomies who say their quality of life is way better than before, because their Crohn’s/Colitis is effectively cured, and the stoma and bag is the price they pay. Keep on writing, because your story and the way you have adapted will undoubtedly help someone who is struggling to cope with this completely alien contraption on their belly like I was.

    Like

  32. ronnie says:

    Hattie, I’ve been reading your blog and you young lady are an inspiration to me I was diagnosed with rectal cancer in 2010. After chemo and radiation, the cancer tumor was removed and i also had an illestomy bag. I wore the bag for about four/five months and had a reversal done. I didn’t have knowledge or support while I wore that bag. I was embarrassed, uncomfortable, and in pain the whole time. The stoma area was constantly infected, not fitted correctly, and leaked often. Dr and nurses were not helpful and those four months were dreadful. I isolated myself and tried to hide the bag with my clothing. Thankfully it was removed but just reading your blog made me realize that there was nothing to be ashamed of . wishing you the best.

    Like

  33. Haider says:

    Hi hattie.
    I wanted to say I’ve been showing patients of mine who have struggled with their aroma related issues and getting used to having inflammatory bowel disease your blog. It really helped them get your perspective . Stay strong , you’re not alone.

    Like

  34. Claire says:

    Hi Hattie – I’ve was diagnosed with UC in march 04 and went on to have an ileostomy the same year (aged 27). Like you I was very ill before the op. After my life went back to normal (I could leave the house again!) and I have never looked back. I now two beautiful children and plan to have it made permanent in the next couple of years. Your blog is fantastic – and I love your bikini! You look amazing in it. Keep up the great work raising awareness for us bag wearers!

    Like

  35. Reece says:

    Hey Hattie, Glad to read your blog. I also have an iliostomy bag. Severe UC in September last year cause me to have a laproscopic total colectomy. I feel your pain of going to the toilet in pain, Before my surgery I was also very sick with blood in my stool which caused me to get Anemia also. It feels like you’re being stabbed in the bum with a sword. Since September I have a total of three surgeries to reverse the procedure. I have just had one in Feburary this year which involved them making a new colon and rectum for me. I had a new stoma made at this time, so he has gone from being a Eugene to a Duncan. Duncan is a trouble maker, I liked Eugene way better. However I have a rehab period of 6 months from my second surgery to the third before I will be joined all back up and hopefully resume a normal life without a stoma. Im sure glad to know there are others out there who have been through the same thing. You are much stronger than you think. Keep on pushing through and not dont let the bag govern who you are. Ive learned an incredible amount in my journey and I know you will too. As for love and relationships, you are very lucky to have had your BF there to support you. Of course I had my friends and family to support me, but I had to go it alone in that respect. The hardest part for me was not feeling broken and unable to find love again as I feel it would become a huge red flag for others. However ive learned that those people are not worth it and in time, someone will come along who it doesnt bother. In the mean time its best to focus on your journey and be the best you can be

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  36. Suzi Dalby says:

    Oh I so wish you were around 14 years ago! I had the exact same story when I was 13, multiple visits to Doctors then a rush job into hospital, entire colon removed and hey presto an ileostomy!
    My stoma was called Stanley and my favourite explanation of the constant toilet going was “well you can only wee in the swimming pool, I can poo too!” Keep being your awesome self and never let it get you down.
    I mayself have undergone reconstructive surgery and now have an ileo anal pouch (internal poo bag :)), if you are going to head down that way give me a shout and I can swap stories.
    An ex baggie-now-pouchie!

    Like

  37. jk says:

    You are a brave girl and a source of inspiration for all those confronted with such illness. I really admire your courage and positive approach towards life. May God bless you with long & prosperous life.

    Like

  38. Jim Moore says:

    Way to go, I had the same thing happen when I went on peritoneal dialysis, the catheter is my stomach made me sick every time I looked at it, but unlike you I tried to hide it and I felt like a freak. I got to the point I just want to stop dialysis and die, fortunately people came into my life who accept me as I am and now I no longer hide my catheter just in case there is some one out there who see me and are going thru the same depression as I was before and can see they are not alone. . Never give up, never surrender, every life is precious.

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  39. Emma says:

    My dad has UC and my sister has Crohns, my dad has had an ileostomy for 15+ years now and we know that without it he wouldn’t be here now. He’s very open about the fact he has “a bag” and says if he could have his time over again he’d have it sooner as the problems he had before he had it restricted him in his day to day life. I’m finding your blog a fascinating read, it’s so good to see someone else being so open about having a stoma. My children are now 10 and 8yo and don’t find the fact their granddad has a stoma or the bag unusual at all, they know it’s there and they know what it’s for. I wish I’d had more knowledge of it all at their age, it was quite a scary thing when I was told all about it at 18yo, I’d never heard of it before. I got very involved with my dad’s care after his operation and that helped me gain an understanding of it all. Keep on with the blog, I’m sure it’ll help many fellow bag wearers and families of bag wearers xxx

    Like

  40. Clare Beard says:

    My daughter is 14 yo and like you was diagnosed with UC. She was diagnosed when she was 7 years old and had her ileostomy when she was 9 years old. She was still in primary school when she had it and her friends and teachers were very supportive to her.
    She has since gone on to High School and this is where she has been struggling. She has faced a lot of negativity from some of the other students through ignorance etc, and has handled it very well, but has been feeling very down about it lately. I was wondering if you had any advice for her ?

    Like

  41. GaryMP says:

    Hi Hattie,
    Just read your story on the Mirror website. I’ve got to say I admire what you’re doing. I had a stoma for just over a year in 2008/2009 and all it left me with was PTSD. I didn’t cope with it anywhere near as well as you are doing. Take care.
    Gary
    (Tiwtter – @GaryMPollard)

    Like

  42. linda zimmer says:

    hey hattie
    i just want to say you your grate 😊
    i have a illeostoma too because of colitis ulcerosa.
    i was sick since 2009 at age of 12. Now im 17 and im so damn happy with my bag. My life has more quality since the surgery.
    Its grate to so others with same problems dealing so well with it 😊
    mabey we can kontakt and write over email or facebook 😁

    Linda:)

    PS:sorry if my english is bad i am german 😅

    Like

  43. Lieke says:

    I feel ashamed that I can’t accept myself and my body (I have crohn’s disease and prednisone is making me gain weight super fast, without me eating it up there). I read your story and all I feel is respect and compassion. Wow. You are so beautiful! When I look at your pictures I think, what a beautiful girl. Not: oh my god look at her belly.. I hope this helps you, because you are truely beautiful. That bag saved your life, it should be honored instead of feared or made fun of by other people. If anyone tells you it’s ugly, slap them in the face okay? Or I’ll do it for you. You go girl. Be happy. and be sad, because of course it is horrible what happened to you. I only hope you get a fantastic life, to make up for this crap. You inspired me to accept my body, either if it’s super skinny or super fat, it’s alive. Lots of love, xxx Lieke

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  44. femke says:

    BIG RESPECT 💟 you are a verry pretty girl and you dont need te be ashamed for your stoma !! You show the world and other peopel that have something like that that they dont need to be ashamed of those things…. and otherwise you show them that your strong….!! I mean it big respect !!

    Like

  45. DaviDrums says:

    Be happy with yourself to share happiness with others.
    Whether you miss a limb or your blind life is about getting born, live and die so live to the fullest while your here.
    Let no one tell you otherwise, there’s nothing that you can’t do if you set your mind to it!

    Like

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